In 2025, the NICU at the Women’s & Children’s Center at Moses Cone Hospital partnered with Meagan Patillo, Executive Director of Family Support Network of Central Carolina (FSNCC), and Lillian Wright, Senior Patient Experience Manager for Cone Health, to establish a Parent and Family Advisory Council (PFAC). This newly formed council allows NICU staff to actively listen and explore what works well and what is needed to improve parent experiences. The council includes several parents who had infants in the unit within the last few years, NICU leaders and representatives from FSNCC and Patient Experience. The council meets monthly, and NICU leaders attend meetings every other month. In other months, parents explore their experiences and insights with each other. They bring suggestions to NICU leaders in subsequent meetings for further discussion. “It has been rewarding to see how relationships are built among the members, and how much we gain insight into what is beneficial in our current culture. One of the best outcomes is a list of thoughtful suggestions that will enhance parent experience in the unit,” says Susan Jones, BSN, RN. The information captured from this group is combined with feedback from Press Ganey patient experience surveys and comments from parent rounding. The combined information will be used to guide changes in how NICU staff communicate with parents and inform policies and processes that need to be refined or developed. Advisory council feedback has guided white board updates and produced ways to enhance parent participation in MyChart accounts for their infants. MyChart has become an important pipeline for parents to have timely communication with physicians and support staff. Pictured are members of the team who worked to develop the NICU Parent and Family Advisory Council. Left to right: Susan Jones, NICU Department Director; Meagan Patillo, Executive Director, FSNCC; Melissa Brooks, FSNCC NICU Support; and Lillian Wright, Sr. Patient Experience Manager. Not pictured: Ben Rattray, DO, NICU Medical Director, and Carmen Cederholm, MSN, NNP BC, NICU NNP Director. NICU Parent and Family Council Enhances Parent Experience “Cone Health has long embraced the belief that parents and families are an extension of the infant and an integral part of care,” says Susan Jones, NICU Department Director. “We are thrilled to have the voices of the parent to enhance our promise that we are right here with you.” 14 NURSING IMPACT REPORT 2025 OUR COMPASSION IN ACTION
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